Key Adviser appointed to PFO Research Foundation – Australia

We are very excited to announce that Ms Bray Patrick-Lake has agreed to be a Principal Adviser to our PFO Research Foundation.

As many people would know Bray established the USA based PFO Research Foundation in 2010 in response to the lack of definitive scientific information regarding the condition of patent foramen ovale (PFO) after being a patient in an aborted clinical trial.  Ms. Patrick-Lake has served as a patient representative at the FDA on a variety of advisory committees and panels. She also moderates a very successful online Facebook support group for patient with PFO with over 1000 members from around the world.

Ms. Patrick-Lake has just recently been appointed as the co-chair for the Advisory Committee to the NIH Director and President Barack Obama called the Precision Medicine Initiative (PMI). This is a bold new enterprise to revolutionise medicine and generate the scientific evidence needed to move the concept of precision medicine into every day clinical practice.

We are very excited that Bray has come on board. We certainly value her level of expertise and commitment to raising the profile of Patent Foramen Ovale (PFO) and the diseases that are associated with it.


Top End Challenge

Fancy a short push bike ride out in the bush?

How about  a 700 km ride through the Northern reaches of West Australia, starting near Broome ?

That’s what Megan Erbs and four (4) other team members are doing from 17-21 May 2015. ‘Rule Number 5′ have kindly chosen to nominate PFO Research Foundation as their 2nd charity for the upcoming event. They are busy sizzling sausages, and selling merchandise and have so far raised over $3000.

The PFO Research Foundation is currently asking for donations to commence a pilot study using advanced Genomic/ Genetic testing to understand the relationships between a hole in the heart (PFO), migraine, stroke or other chronic diseases. A PFO is present in approximately 25% of the population, but not a lot is known about why some people suffer from it and others have happy healthy lives.

Megan had a PFO closure in December 2013 for frequent severe migraine with aura. Megan has always been a very fit individual but found she can now exercise harder and longer and most importantly is free of migraine for the first time in her life.

I now live a healthier and more energetic life not worrying about stroke or heart disease.  I have been headache and migraine free for 13 months. Since my PFO Closure I haven’t looked back.

For as long as I can remember I had suffered with headaches, migraines, dizziness and fatigue but did not believe that anything could possibly be wrong with my heart.  After all, I run half marathons, am a cycling fanatic, compete in Olympic distance triathlons and long distance swimming events, play touch football, netball and water ski.   I would flog myself throughout the week and go to bed most nights with a headache or migraine.  By the weekends I would spend the days sleeping to recover from the past week and prepare for the week ahead. 

The Gibb Challenge: a socially competitive 700 kilometre team relay event raising community awareness and money for charity. In 2015 our Principal Beneficiary is Kyle Andrews Foundation. – See more at: http://www.thegibbchallenge.com.au/

We wish Megan, Hillary, Cassandra, Kyle and Aaron from ‘Rule Number 5′ all the best for the fundraising and of course the ride.

If you would like to donate to the team, click here

If you would like to follow their adventures try their facebook page

rule number 5 bunnings rule number 5 beach